Monday, November 24, 2014

Day +13

Here we are 21 days in... Addie remains stable but still quite sick!  Each day it seems that something turns up and puts just a tiny kink in our road to recovery.  She is far better than she was last Tuesday but she is still very far from going back downstairs and eventually home!   Currently Addie is dealing with something called rhabdomyolysis which can be caused by a number of things, it can harm her kidneys, liver and skeletal muscles.  The treatment for it is typically dialysis which is what we are already on but what that means is that this whole dialysis process is being dragged on!!  From a ventilator/breathing stand point, Addie is doing really well and will be ready to come off of that as soon as the dialysis is over!  Her heart is also doing quite well, which I am beyond thankful for!! Thank you Jesus!!!  Addie will be getting a new eccocardiogram soon to examine just exactly what her heart function is.  I am praying all will be well and she will be able to come off of her heart medicine soon!! 
We have a something quite scary knocking at the front door... It is called VOD and it appears that Addie may be headed in that direction!  This can cause liver damage and death, it is typically self limiting but if the damage is severe the liver can not be repaired!  Please ask Our Heavenly Father to see Addie through this, to guard her liver and protect it from damage!!  Please Jesus let Addie be past the bumps in the road, please Lord see her past this!!!
On an even more somber note... My little sweetheart seems sad, quite down about her current situation!  Our Addie doesn't get sad or hopeless and throughout all of this I have never seen her cry until yesterday!  It is absolutely heartbreaking to see the hurt in her eyes and see those big crocodile tears fall down her checks!!!  I have been praying overtime that He would comfort her, letting her know this is just temporary and she will be past this soon!!   Please pray the same, pray that she would feel our love and that His peace would fall over her!!  Please Lord let her not be in pain and please don't let her lose hope or lose that will to fight!!  Please Jesus let this be over soon... Let me see my baby girl again, let me hear her sweet voice and see her precious smile!!!  Give us our Addie back!!! 

We love you Father and thank you for everything you do!!  I thank you for carrying me through this and allowing me to constantly feel your loving presence!! 

Go Team Addie!  

5 comments:

  1. We pray, our entire family prays for you each and every day, in school, at home, in the car. We think of you all. Our Advent activity this year is a Blessings Jar and all of the blessings and proceeds of the items we are thankful for will go to Team Addie. Here's to fighting the fight. I pray for a smile for Addie, peace for you and faith for your girls and family. Stay strong. All our prayers...Stacey, Kelly and kids

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  2. Mandy, my heart hurts for you! Seeing your children cry in pain is so hard. I will continue to life Addie up in my prayers. God is in control and has Addie in the palm of His hand! Hugs and love to all of you!!!

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  4. Amanda we are praying and praying daily!!! My heart hurts for Addie and for you to watch your baby girl go through this horrible awful process! Prayers and love for your family!! 💙💛

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  5. Prayers continue for Addie and all. There is no way I can imagine what this is like for you and for all of your family. Please dear Lord guard and protect Addie and give her comfort, love and support through this trying time. Also continue to be with Mandi and Reed and her sisters and give them your comfort and strength. As we all know, You never leave us or forsake us. Please dear Lord, bring Addie through this. Amen. Our love to all of you and God is with you.

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