We have been keeping busy here at the hospital and have had some pretty special visitors!! We finally got to see sisters and Daddy on Sunday, both Mommy and Addie needed that!!
Addie had an NG tube placed for proper nutrition and to aid in the delivery of her oral meds, she was pretty mad at me that day... Lots of daggers were sent my way!! She is definitely adjusting to it, her ability to adapt is unbelievable! Her strength and perseverance is an inspiration and I am in awe of her every day!!
She is definitely feeling pretty cruddy and hasn't been her usual cheerful self the last few days. She isn't having any pain so far, praise Jesus, but her tummy is incredibly upset. So far her body is handling everything ok, her kidney and liver levels were elevated today, which gives Momma a lot of anxiety!! I don't know how they couldn't be with the large amount of toxins she has had put into her body but it is still very scary! This process is going to bring about a lot of new scary things I am afraid. I just pray that Addie's body stays strong and can repair itself... She is so strong, such an amazing spirit!! Please pray that there is no permanent damage to her organs, pray that we see her kidney and liver function/enzymes resume normal levels over the next day or so and it is just a temporary side effect from the chemotherapy!
Addie is officially neutropenic, which means she has no immune system and her body can't fight anything. It is more important than ever that we pray for no infections or viruses. Praying also that her body welcomes the new cells, prayers for a record breaking engraftment!! I asked the doctor what the average time frame for cells to engraft is and he said between 7-10 days. This is how long it typically takes the new cells to incorporate and for her body to begin making its own RBC, platelets and WBCs... This is an incredibly variable amount of time and it can take much longer than this!! Until Addie's counts begin to recover, she will be very sick!! Unfortunately, we have only started the downhill decent. It is likely in the next day or two she will get severe mucositis from her mouth to her anus... This is incredibly painful and also increases her risk for an infection! It is pretty definitive that she will get it, please pray that it isn't severe and it is short lived!! Please pray that the pain medicine we have to manage it works and that she can rest!!
Thank you everyone for your prayers... They are especially important over the next month. Addie's life will forever be unclear, as all of ours are, but forever she will fight and forever we will put our trust in Him!! I feel your support and I feel His comfort and I thank you all for continuing to pray for my sweet Addie girl and our family!!
Go Team Addie!
fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous hand.
Isaiah 41:10
Bradley with his matching feeding tube!
