Addie was taken off of the ventilator this morning without any complications!! She was in a great mood... Talking, playing with her sisters and being Addie :). How incredible it was to hear that sweet voice and see that one of a kind personality!! I actually got to hear that Momma, momma, momma stutter that she does... Melts my heart!!!
They have been weaning her oxygen throughout the day and she has been tolerating it very well! Her chest X-ray improved some this morning and surprisingly her platelets have maintained... First day in over 3 weeks Addie has not required platelets! Praise Jesus... Praying that her numbers will look even better tomorrow!! So far all the cultures and tests from the bronchoscopy have been negative. We are still waiting on the bacterial cultures!! In some ways it would be nice to have a diagnosis so we could treat whatever is causing this, only then could we know it would be definitely be gone. I just don't think that is going to happen... I really think Addie prefers to keep us guessing!! I am not convinced we will ever have an explanation for any of this and frankly, I really don't care!! What does it matter if in the end my baby girl is healed and all is as it should be... It will only be that much more miraculous and let's be honest, she is MIRACULOUS!! It appears that she is doing better?! We never really know with her as she likes to knock our socks off and then make miraculous recoveries, little stinker... But today she is better, FAR better!!
Today I really heard the Lord saying, "Mandie, TRUST me!! Trust in My time; she will heal." His time being the key... I got a real sense of clarity about that tonight after reading my devotional!! My devotional (Jesus Calling, Enjoying Peace in His Presence by Sarah Young) said that hurry is not in His nature and that often the longer we wait the more our enjoyment intensifies!! I have learned that waiting and watching is not something the medical profession is overly comfortable with. Hurry and treat is more their comfort zone!! I really believe The Lord is telling us to just breathe, step back and give Addie time. Her body needs rest without being pushed or driven!! That amount of time is unclear and completely out of our control! She will heal in His time...
Thank you Jesus for your presence and for your peace, once again you comfort my anxiety and hug my heart!! Thank you for giving us this day... this beautiful day with Addie feeling good!! She only had one episode of nausea, truly a miracle!! She was taken off of the ventilator and the next hour she was blowing bubbles with her sisters, sitting in her princess chair and coloring... Amazing is an understatement!!
With all of this being said, I still don't trust my little GUSTO girl! Thankfully what I do trust is far more powerful!! Addie may still have a few tricks up her sleeve... Maybe she is paying me back for something?! She did hate that NG tube I made her get :) joking!!
Addie, sugar cakes... Mommy has had enough of these ups and downs, I am ready for you to come home!!
Go Team Addie!! Prayers for continued improvement and her feeling good... total HEALING!!
"Let your hope make you glad. Be patient in time of trouble and never stop praying."
Romans 12:12
"Have patience, God isn't finished yet."
Philippians 1:6
We went from this...
To this... I have to say it again, God is so good!!!
The tiger twins... Addie sitting in her princess chair showing Sissy how to breathe into the spirometer!!
Our Christmas tree... Decorations made by Gracie and Grandma!! Absolutely perfect!!!