We will definitely miss the wonderful doctors and nurses in the PICU... They took such wonderful care of all of us, I really can't say enough good things about their team!! We were in such great hands, thank you Jesus for the wonderful care we received!!! Prayers for all the patients and families that remain in the PICU... May The Lord heal and spread His strength, peace and comfort to all!!!
God is so good. Addie is doing much better... Her organs continue to heal and grow stronger each day!! Her kidneys and liver are stable. We should have another eccocardiogram in the near future to recheck her heart but as far as the doctors are concerned her heart is doing great!! All of her organs are doing better and the doctors appear to be very pleased. Her blood pressure is high and she is on a couple of BP medicines. This is likely do to her kidney function and her body getting reaculmated to kidneys that work but it is alarming and we would love to see that go back to normal!
I have learned that doctors in general are all fairly pessimistic (they say realistic) and rarely give very much reassurance but as far as I can tell by my constant prying and questioning Addie is doing great. She is definitely doing better than any of our doctors dreamed she would be, especially considering how bad she was!! I think Addie has shocked the socks off of most of the doctors in more than one way... She definitely made believers out of those that weren't already!! That is what life is all about... Bringing people to Team Jesus and I think Addie is doing a pretty good job at recruiting!! :)
We are back in the big room... It is even more amazing after being in that shoe box for 21 days!! I am hoping to put up a Christmas Tree and bring some Christmas cheer to my little sweetheart! Addie continues to feel really cruddy and I am praying that this will just disappear as everything else has... I really want more than anything for her to just feel better!! Please pray that she would begin to feel good!! Please continue to pray that her organs would make a full recovery and lastly that she have a long cancer free life!!
We will likely start radiation next week, more on that later!! I have to get back into that Momcologist role... I had a slight vacation from Neuroblastoma!! Ha, a vacation full of life threatening events!! Praying hard that was our first and last experience with life threatening events!!!
I pray that God continues to work miracles in my sweet child's life and that glory will come to Him in her survival and magnificent defeat of this awful cancer!!! Addie can do all things through Christ who gives her strength... My version of Philippians 4:13.
Go Team Addie