She battled some fluid retention the first night and then peed like a champ and ended treatment right around her starting weight... Yay Kidneys!!! She had some pain the first day, mostly belly pain but the following days the pain was well managed! Her morphine definitely made her a bit angry but nothing myself and Daddy couldn't manage!! She had sky high fevers (105.6) but was unaffected by them. She actually seemed to be in the best mood when her fevers were the highest!! The fevers weren't infectious in nature just a side effect of the antibody itself which made them pretty easy for her to deal with!! However, it was definitely alarming feeling her that hot and seeing the reading on the thermometer! She had a slight issue with low blood pressure but otherwise sailed through the treatment! She was finished Thursday night around 9:00PM and since has felt a little cruddy! She is battling some tummy issues and diarrhea!! Praying that soon will subside! We got home this afternoon and are hoping that she will perk right back up to our crazy little Addie Bean!
So much to be thankful for!!! Thank you Lord for seeing us through this first round, for keeping her heart and kidneys strong, for keeping all of the really severe side effects away and for keeping my sweet girl out of harms way! Thank you Jesus for the wonderful PICU staff! Thank you Team Addie for all the prayers, and for all of your love and support!!!! Thank you Grandpa Darwin for taking care of my patients and a big thanks to both Grandpa Darwin and Grandma Carol for taking care of my girls while we were away!!
Praying for some healing time at home. Always praying for the cancer to never return... Crazy how anxious I feel about that starting this treatment, like in some way this could trigger things to grow, I was reassured this could not happen!! But as always please say a special prayer for her cancer to never return!! Praying for a fun summer of quality family time!!
Addie's next round starts the second week of June!! In the mean time, we will keep up with the shots and start Addie on Retinoic Acid! There are some yucky side effects that can come along with that such as depression and suicidal thoughts. She has to swallow four adult size pills a day, please pray this goes well and she stays my positive "sweet" Addie Bean!!
Go Team Addie!!!
