May 30th Addie Update

Update... Our first week home was almost a success, Addie had been feeling so good, only wanted to be outside and play, play, play!! We took a little turn last night and she started running a fever... Which was expected at some point over the two weeks we were home, more of a surprise if she wouldn't have! So we are now at Covenant (praise Jesus we can be here and not all the way in Iowa City) they have been wonderful here!! She is on close watch and visitors are limited... Basically just Mom and Dad! She is tired and definitely not feeling good, praying that she will perk up quickly and her counts will come back up so we have to spend the least amount of time here, but likely a week due to how low her counts are! We also got another piece of bad news... Seems that is all we get with Naughty Randall, he is the worst of the worst, which we already knew and expected. Her NMYC was amplified, which they expected and is pretty typical for stage 4 Neuroblastoma!! What that means is that her tumor is aggressive and much more likely to return!!! The good news... I try to always find that in all this yuck, is that she has been virtually pain free since the chemo, rarely have had to give her any pain medication!!! That is a great sign that things are shrinking!!!! Pray, pray that our little sweetheart stays tough and kicks this thing so hard it never returns!!! Prayer and hope is all we have during this time... please Jesus take this away and away forever!! Thanks for all your love and support!!!