Day +21

What a day... I swear this roller coaster we are riding up here can send a Mom to the Loony Bin :).  I am going to say all in all today has been a win... We definitely had a bump in the road but overall still climbing that hill to recovery!!  The bump... Addie is having blood in her stool.  I'm not talking about a tinge of blood in her stool, it is straight blood (sorry for that visual)!! It is quite alarming and it is unclear as to why it is happening!!  As of right now, the doctors are chalking it up to intestinal mucositis and I'm praying that is the case.  I don't know why that would still be the culprit but it would definitely be the best case explanation!!  Please pray that whatever is causing this bleeding will subside and that her blood counts would begin to maintain themselves!!  I would really love to not have any more bumps in the road... I feel like Addie has overcome enough for this round and she is more than deserving of a red carpet to finish!!!  Please Jesus lay out that red carpet and let my girl sail through the rest of this cancer treatment business... Thank you Father for continuing to support us through this, for your continual strength and your unconditional love!!! 

They continue to wean Addie off of her sedation medicines and once that is done it sounds like we will be able to go back downstairs!  I am not sure what the time frame is for us to be able to come home?!  I think there are still too many unknowns at this point to discuss that!! Her fever has been better this afternoon!! Yay!!! :) Thank you Jesus!! I am praying that her fevers would stay away for good... Fevers are scary and usually mean something bad is happening so it would be great if they could just go away.

My Addie girl loves to keep the doctors on their toes!! It seems that she doesn't really like any of her symptoms to have a cause she just likes them to appear and then miraculously disappear :). Praise Jesus for the disappearing part!!! 

Addie is definitely dealing with a pretty bad tummy ache and has thrown up quite a bit!! I am told this is normal post transplant for Neuroblastoma patients and it could stay this way for months... I pray that is not the case for Addie!!  She has been through the ringer and I would love for her to start feeling better... I seriously can't describe how incredibly strong and resilient she is... She is such an inspiration!!  

Addie  is definitely back to her old bossy ways and is making sure she keeps me in line... I have heard far more yells than I love yous but I will take anything :) I love that gusto and that fight!!!  Daddy came to visit and he was showered with kisses and I love yous... I know mine are coming!!  It is Mommy who tortures her and makes her do everything the doctors and nurses want her to do... I just remind her that Mommy is only trying to make her better!!  I did get to hold her for a bit today which was so nice... I miss that so much, being able to hold her and carry her!!  I just love her so much!! 

She decided that she loves apple juice today... Uh oh, juice is a big no-no for us dental folk :)  I suppose I can let it slide for now!!  

She has yet to ask for her paci... I haven't brought it up even though there is a part of me that wants to see her with it again!!  For the longest time that paci has brought her so much comfort!  When I think of my Addie Bean I see that paci and her special blanket!!  Just last month Addie told me she was taking it to kindergarten with her :).  I just keep reminding myself that she is 3 and 1/2 and absolutely should NOT be sucking on a paci... Maybe this is the end for paci?!  

Tomorrow is a new day... Praying it is a great one and thanking Jesus for this one!!! Each day spent with this girl is a WIN... No matter how it was spent!!  

I love this... 

The ultimate protection against sinking during life's storms is devoting time to develop your friendship with Me! 

And what a friendship it is!!! 

Go Team Addie!