I ran into our surgeon in the hall who is a Godsend!! He asked right away how Addie was doing! I asked him if he had a chance to see her scans after round 2 and he hadn't, he sat down with me in the clinic and reviewed them! It was the first time I saw them, I have been too scared to see them because I was so overwhelmed by diagnosis week!! They were incredible, the difference is unbelievable!! So wonderful to see that, especially with the rough few days we have had! He also spoke with me a bit about N-MYC, I can't say that I felt better about what he said but I definitely felt more informed and it didn't make me more scared!! I don't think I will ever feel warm and fuzzy about that piece of her diagnosis or any part of her diagnosis for that matter!! But what I do feel good about is her response to treatment!! I pray that this continues!! Our surgeon said he saw a girl once go through treatment and her tumor never shrank, it just continued to grow, thank you Jesus for Addie's positive response to treatment and for doctors and researchers who specialize in this!! Just a few years ago there really would have been little hope of Addie surviving!! We still have a long haul but there is definitely more hope for recovery!!! We all just need to have FAITH, the single most important factor in Addie's healing!!!
She is currently getting a platelet transfusion. Thank God for blood donations... Thank you to anyone who has done that!! I have never appreciated or realized how important that was until all of this!! One of the many things I now appreciate so much more!! Donate, Donate, Donate... It really does save lives!!
Okay counts... Let's rise!!!
Go Team Addie!!
What a day you've had. And what a tough little girl you've got. 💓 Thank you for taking the time to update!
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