God is Good

All clear!!!!! And she woke up in a good mood :). And we got to see Dr. Sholler, who is amazing... so thankful for her and the research she does!! 

Thankful for all of you and your prayers!! Thank you for taking the time to love and pray for our girl!! 

NED!! 

Best. Day. Ever.

She believed she could, so she did!!!  

Psalm 46:5

Merry Christmas and Happy New Year

Merry Christmas and Happy New Year Team Addie!!  Sorry for the long delay in posting! I hope you all had a joyous and blessed holiday season!!! We are praising God for a cancer free 2016.  We are so unbelievably thankful!! 

We are off to see the wizard the wonderful wizard of oz...  It is scan time again and we are headed to Michigan tomorrow.  Addie will be scanned on Thursday and then we will meet with Dr. Sholler to review the results!  We have been on DMFO for a year and we are so thankful for this drug and the hope it brings.  So thankful for Dr. Sholler and her team, the many researchers hard at work in the lab, and for the amazing people raising the funds that made this study possible.  I am praying it works for our sweet girl and all the precious children facing this terrible monster called Neuroblastoma!  It is such a blessing in a world filled with toxic therapy that it comes with such minimal side effects.  Addie's hair doesn't grow and her hearing is pretty terrible but it is amazing how little these things matter when your baby is CANCER FREE!!  

Praying DMFO and all of her other therapy has killed this vicious monster forever!! Praying that my girl has another year of clear scans and no cancer!! Prayers that she will be cancer free for an eternity!!

Please pray for our little Addie Bean, for clear scans, smooth appointments, safe travels and peace for Mommy and Daddy. 

We have an amazing father who hears and answers our prayers!!! 

We appreciate you all so much and thank you for your prayers!! Thanks for taking the time to check in on our girl and for your kind comments!! Love you Team Addie. 

Just a few pics of some things our little Miss has been up to...

Transplant Anniversary

Two years ago today our precious Addie Bean had her stem transplant.  

We witnessed a miracle that November.  Shortly after her transplant, Addie was closer to death than life, her heart and kidneys were failing and she was intubated.  God stepped in, answered our prayers and saved our baby girl's life.  Jesus walked us through that time, healed Addie's organs and just to show off a bit, he had her back home on Christmas Eve!!!!

 Hallelujah, God is good!!! 

We love you Addie Bean, thank you for always fighting and for never giving up!  I am so blessed to be your Mommy.  Thank you Jesus for this beautiful girl!!

Give thanks to the Lord, for he is good; his loves endures forever.  Psalm 107:1

My Miracle Girl

This makes my heart overflow with thankfulness!! 

What a miracle this little girl is!!!! 

Two and a half years ago Addie couldn't even bend at the waist because of the tumor along her spine and here she is now!!! 

Hallelujah, God is good!!! 

Psalm 46:5

Anniversary

One year ago today our sweet Addie Bean had her central line removed!!!! It has been one year of no chemo, no inpatient stays, and NO cancer!!  

She amazes me everyday; what she has endured is more than imaginable.  She is our sweet, sassy, and loving girl and I am so blessed to be her mother.  

Thank you God for this precious girl, for allowing me to be her mother, for her fight, for your unending faithfulness, for all the loving people who have and continue to support us, for the wonderful doctors, nurses and researchers that saved her life, for all the wonderful memories made and milestones met, and for another blessed year spent with out beautiful girl!!!!

Prayers for 100 more years together, all cancer free!!!!  

Prayers for all those lost and their families.  

Prayers for those still fighting.

Prayers for a CURE.

Prayers for the funding of research.

Prayers that they will realize 4% isn't enough.

Prayers for researchers who are trying everyday to save our children.

Prayers that no child will have to suffer from this awful disease.

1 Chronicles 16:34

Give thanks to the LORD, for he is good; his love endures forever.

Results are in...

ALL CLEAR!!! 

Our baby is once again NED!!  

Praise God for he is ALWAYS good!!!! Thank you everyone for praying us through!!!! 

Now we celebrate!!!

Still waiting...

The software that is suppose to load Addie's scan shutdown nationwide so we still have NO news!!!  We are impatiently waiting.  We will update as soon as we know anything.  Until then, please keep praying for good news.

We planned a little vacation to lighten the mood a bit this round.  I felt bad dragging her to Michigan and back in 24 hours the last two times.   When we arrived to our room last night this was in it... 

It has to mean good news is coming, Please Jesus!!!! (Who knows what is on her shirt, it was a long trip, haha)

Please keep praying Team Addie