Monday, May 26, 2014
Home
Addie is doing so well... Better than I could have ever imagined considering what she has already gone through!! She went from the healthiest girl (never needing to have an antibiotic) to already over 50 beads on her Beads for Bravery necklace! She is such a strong willed, happy girl! Since we have been home all she wants to do is be outside... two weeks in a dark hospital room explains why!
Home has been hard for Mommy. It feels so normal and life is so far from normal... I have to remind myself to take it day by day and remain hopeful that our Heavenly Father will heal my beautiful little girl and take this all away!! Why did this happen?! I will never understand why but I have to trust that we will all come away from this horrific situation a better, happier family with three perfectly healthy girls!! Please Jesus let this be the case, let me watch my baby girl grow up... I can't imagine a life without her, nor do I allow myself! A life without my Addie Bean is a life that I do not want to live!!
Thank you everyone for all of your prayers and support!! Thanks for the lovely gifts for the girls and the gift cards, money and food! We are so blessed to have such wonderful friends and family!! Please continue your prayers for our sweet Addie...
Lots of love ❤️
Saturday, May 24, 2014
May 24th Addie Update
Should be coming home today :) first round of chemo is in the books!! She has been doing so good... Just our normal wild woman with a pole attached "the robot!" She is getting a transfusion today, so she will only be wilder :)
It is scary and overwhelming to come home but we are so anxious to have our family together again!!! Life will forever be different but different isn't always bad... We talked with a man the other day whose son was diagnosed last year with stage 4 Neuroblastoma (just like Addie), whom I am positive was sent here by God to talk with us... He brought us comfort and peace with Addie's diagnosis and encouragement that life doesn't get worse but better, because you have such a better appreciation of life and your family!!
Please continue to pray that Addie stays strong and her spirits stay up and mostly that "Naughty Randall" (the Neuroblastoma) will be gone forever!!!!
Thanks for all your love and support!! Cedar Falls here we come :)
Tuesday, May 20, 2014
May 20th Addie Update
Treatment has officially started and she was riding her bikes all over the halls afterwards and dancing to the "banjos" :) that is our girl!!!! It is going to be a long road... 6 rounds of chemo along with surgery, possible radiation, stem cell transplant and an antibody treatment!! We are confident that she can do it and we will walk away from this hospital cancer free!!!! Please everyone pray that her body can handle the treatment and that the cancer responds favorably and quickly!!! We want this awful thing gone and gone forever!!!! Please keep the prayers coming and keep our little fighter fighting!
Monday, May 19, 2014
May 19th Addie Update
We didn't get the final diagnosis yet... Should come tomorrow! Addie had a bone scan today and it showed that she does have bone involvement! She woke up from sedation pretty angry this time and had the worse back pain we have seen... Morphine has worked its magic and she is comfortable once again! We want to thank everyone for the continual thoughts and prayers and all the wonderful messages we receive!! Please keep praying... One more night of prayers for NO n-myc amplification!! We met with the head of the pediatric oncology unit tonite and reed and I both got a sense of peace in the midst of all of this awful chaos!! He had so many positive things to say about Addie and about the treatment for Neuroblastoma itself, he said that all of the findings for Addie are actually what they expect to find with this specific cancer and they are prepared to do anything and everything they can to fight it!!! He said he has seen little ones just like Addie conquer this awful disease and look back at it all like it was just a bad dream!!! Praying praying praying with all our might that our Addie Bean will be her own statistic and breeze right through this cancer thing!!! She can do it... Please Jesus wrap your arms around my little girl and give her strength and courage to defeat this!!!
Sunday, May 18, 2014
May 18th Addie Update
Met with the doctor this morning and we should have final results tomorrow!! Please everyone keep praying hard that she will have the favorable form and no n-myc markers!! Please Lord bring us some good news!!!!
Saturday, May 17, 2014
May 17th Addie Update
We are having a much better day today!!! She is feeling much more like herself... Still definitely sore but much more pep in her step!!! We need to kill this awful thing... Pray that her body stays strong and her spirit is even stronger!!! This weekend is the calm before the storm!!! She can do it, she is such a brave little girl!! Wish I could take it all away and it is heartbreaking but we have to trust that Jesus will wrap his arms around her little body and keep her strong... Here we come Cancer free!!!
Back to herself... Entertaining everyone with loads of personality!! We love you so much Addie Bean, my heart overflows!! Mommy knows that "attitude" of yours is going to kick this awful thing in the butt!!! ❤️
Friday, May 16, 2014
May 16th Addie Update
We got some pretty bad news today... Addie's cancer is in the bone marrow which automatically stages her as stage 4. It is going to be a really long road for recovery but we have to trust we will get there! We are praying for some good news but it just seems to keep being negative! She is still pretty uncomfortable from surgery and from the mass itself. We are hoping that she will continue to perk up!!
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