Monday, November 24, 2014

Day +13

Here we are 21 days in... Addie remains stable but still quite sick!  Each day it seems that something turns up and puts just a tiny kink in our road to recovery.  She is far better than she was last Tuesday but she is still very far from going back downstairs and eventually home!   Currently Addie is dealing with something called rhabdomyolysis which can be caused by a number of things, it can harm her kidneys, liver and skeletal muscles.  The treatment for it is typically dialysis which is what we are already on but what that means is that this whole dialysis process is being dragged on!!  From a ventilator/breathing stand point, Addie is doing really well and will be ready to come off of that as soon as the dialysis is over!  Her heart is also doing quite well, which I am beyond thankful for!! Thank you Jesus!!!  Addie will be getting a new eccocardiogram soon to examine just exactly what her heart function is.  I am praying all will be well and she will be able to come off of her heart medicine soon!! 
We have a something quite scary knocking at the front door... It is called VOD and it appears that Addie may be headed in that direction!  This can cause liver damage and death, it is typically self limiting but if the damage is severe the liver can not be repaired!  Please ask Our Heavenly Father to see Addie through this, to guard her liver and protect it from damage!!  Please Jesus let Addie be past the bumps in the road, please Lord see her past this!!!
On an even more somber note... My little sweetheart seems sad, quite down about her current situation!  Our Addie doesn't get sad or hopeless and throughout all of this I have never seen her cry until yesterday!  It is absolutely heartbreaking to see the hurt in her eyes and see those big crocodile tears fall down her checks!!!  I have been praying overtime that He would comfort her, letting her know this is just temporary and she will be past this soon!!   Please pray the same, pray that she would feel our love and that His peace would fall over her!!  Please Lord let her not be in pain and please don't let her lose hope or lose that will to fight!!  Please Jesus let this be over soon... Let me see my baby girl again, let me hear her sweet voice and see her precious smile!!!  Give us our Addie back!!! 

We love you Father and thank you for everything you do!!  I thank you for carrying me through this and allowing me to constantly feel your loving presence!! 

Go Team Addie!