Tuesday, August 12, 2014

"Normal" Life

Home again... it has been so good! So good in fact, that I have been too busy to update, sorry for that!!  We got home on Thursday.  Addie's counts went way up, way fast :) which we were all quite surprised about, her body has done beautifully at repairing and refueling itself... Thank God for that!!

It took a few days until Addie really started to be Addie again.  Her tongue and mouth were sore for another two days and her attitude was pretty sore also!  WOW, can this little Miss be volatile... I suppose I can't be upset or frustrated, I pray for patience and tolerance... Which the Lord continues to give me, praise Him for that!!  I can't even imagine going through what Addie is and she does it with such grace.  Are all times good and happy? absolutely NOT!  But she is doing far better than I could ever imagine myself doing... she is one tough cookie and I thank God daily for her spunk and that internal fire that she has!!
This last stay in the hospital was very tiring for all of us.  It was a realization of what Addie is going through.  I almost forgot, because life has been so good, that Addie is sick.  She is really sick and the treatment she is going through is torture, literally it is poison!  I am so thankful that things have been so good for so long and I have never been happier than when that naughty little personality came back.  I missed her silly faces, her cute dancing, her sweet voice and all the I love you Mommys... praise the Lord that she is back, I can tolerate her naughtiness when it is mixed in with all of her sweetness :)
I realized how hard it is for both Addie and I to be apart from our family... I knew it was hard on me, aside from seeing Addie sick and the fear associated with that, it is the hardest thing for me to deal with.  I LOVE being a Mom and I love being with my girls, all of them.  It is what brings me joy; where I get my happiness.  When I am separated from them it is awful.  I realized this time in the hospital that Addie too has a very hard time being away from the rest of her family.  Her mood is drastically different when her sisters are around... I love how much they love eachother.

The time at home has been great, as it always is.  There is so much healing in being home :)  We have spent our time just being a family and enjoying eachothers company.  Addie did get to take a trip to Target, her first one... her counts were 10x's that of a healthy persons so I figured it was an okay time to venture out.  However, she was covered in santizer :)  It was like she was at Disney World, she was so excited to be there.  Reed and I spoiled her a little!

I wanted to share a small victory that occurred today... We got Addie a little bounce house last year for her birthday and have not had it out this year.  We have asked her a few times if she wanted to set it up and she would say, "No, bouncy house hurt my back!"  Well today the bouncy house is out and she jumped and jumped and not a word about her back :)  God is so GOOD!!


The treatment is working and she is responding.  I find myself getting scared that the treatment will stop working and Addie will once again be in pain or that the scans will show her tumors have started growing... I have so much fear, I hate it... I pray and I pray and most days it is very well managed, always there but NOT affecting me. I consider this  miraculous because of how much of a worrier I am.  Please help me pray these fears away... Prayer requests for our sweet Addie Bean
-Pray that after this fifth round her scans show MIRACULOUS shrinkage of her tumor
-Pray that her surgery would be minimal and that all tumor cells are REMOVED and dead.
-Pray that her body continues to be strong and impermeable to the toxic chemotheraphy... her urine has been cloudy, please pray that her kidneys are functioning properly.  Her heart rate has also been slightly elevated at times, please pray that her heart stays strong.
-Pray that she feels good this round of chemo... this is the harsh one again (they all are, but this one is most nauseating), please pray that her attitude stays positive despite all the negative she has to incur.

We have scans after this round of chemo for surgery, which would be in the beginning of September if all is well.  She also has another hearing test and a kidney test.  Please pray that ALL tests yield good results.   This round of chemo is the one that can affect her hearing, also damaging to kidneys. PLEASE Lord let her scans show that her cancer has shrunk MORE!
And as always... PRAY for COMPLETE healing, pray that all cancer cells are killed so that they may never come back.
Today I was talking to Grace about riding her bike in the street, she asked when she could.  I said when your 13 or so?! ( that sounded like an ok age?!) and Addie said, "Mom, when I 13 I ride my bike in street too!"  Lord, please let my little GIRL grow up, please let her LIVE!!

Go TEAM ADDIE!!




I had the pleasure of having a spa day at Addie and Gracie's Salon... They do great work :)








Please no judgements for the song she is singing...  I had to share because it shows her personality so well!